Addison was diagnosed with a congenital diaphragmatic hernia during her 19 week ultrasound. She was born February 17, 2009 at UCSF. After 22 days of fighting, she chose wings over feet.
Thursday, March 5, 2009
Update
They are going to try a trial run off of ECMO today. Depending on how she does, they will remove the cannulas tomorrow or over the weekend. We are keeping our fingers crossed that she does well. Please keep her in your prayers today.
Prayer are being sent your way from all over! Addison, you are a strong little girl! marion and Jason we are praying for God to wrap his arms around you all! All our Love and prayers! Shannon, Rob, Ansley, and Addison Gaudette
My heart goes out to you all, I will not only pray for your adorable little girl, but that God will continue to lift you all up and keep you strong. God is Good All the time! keep your faith in Him and Walk and Pray. I am the Chairperson for the March of Dimes Delta Telethon that has been an Annual Event for the last 30 yrs or more. We are the ONLY MOD telethon left in the USA, and I pray that God will wrap you, Jason and most of all Addison in his loving arms, and put her on the road to a speedy recovery. So that one year from now, I can get in touch with you and ask you to please come to the Telethon and give us a live report on how well Addison is doing.
I was lucky to find my soulmate in High School at age 17. I married my wonderful husband in May 2003. We have two little fury children, Bear (Yorkie) and Bailey (Maltese) that have given us a little training on how to be parents. After 5 years of bliss, god blessed us with pregnancy of our first child. On October 23, 2008, our little girl was diagnosed with CDH. On February 17, 2008, Addison was born at UCSF. After 22 days of fighting, she choose wings over feet.
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) It occurs at approximately 9 weeks gestation, when the diaphragm, for an unkonown reason, fails to close completely. The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.
CDH occurs in every 1-2500 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
13 comments:
YEAH!! We will be praying! You can do it Addison!
Hang in there little one. It's great being off ECMO! You can do it!
We are praying that everything goes well :) You are a very strong lil girl Addison.
~ Carla - Joseph's mom (2.3.09 - 2.26.09)
Prayer are being sent your way from all over! Addison, you are a strong little girl! marion and Jason we are praying for God to wrap his arms around you all! All our Love and prayers! Shannon, Rob, Ansley, and Addison Gaudette
Keeping Addison in our prayers.
Sending lots of prayers and positive energy Addison's way!
You know I am praying for her all day long... Stay positive--she will do great! Please continue to keep us posted.
Sending love and support and prayers your way!!
Marion & Jason,
We haven't stopped praying for Addison or you guys, your always on my mind. She's a beautiful and strong little girl!
Jeannie Beck
RUMC
We are praying for Addison.
praying for little Addison!
I am praying thet everything goes well with Addison.
My heart goes out to you all, I will not only pray for your adorable little girl, but that God will continue to lift you all up and keep you strong. God is Good All the time! keep your faith in Him and Walk and Pray. I am the Chairperson for the March of Dimes Delta Telethon that has been an Annual Event for the last 30 yrs or more. We are the ONLY MOD telethon left in the USA, and I pray that God will wrap you, Jason and most of all Addison in his loving arms, and put her on the road to a speedy recovery. So that one year from now, I can get in touch with you and ask you to please come to the Telethon and give us a live report on how well Addison is doing.
Hi, I am Dawn Bryant's friend and she has been keeping me updated. We will continue to pray for all of you.
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