Addison was diagnosed with a congenital diaphragmatic hernia during her 19 week ultrasound. She was born February 17, 2009 at UCSF. After 22 days of fighting, she chose wings over feet.
Monday, March 9, 2009
Still on ECMO
Addison ended up retaining more fluid over the weekend, so the doctor'ssuggested that we give her a few more days on ECMO to get the fluid off so she would be strong enough to be weaned off ECMO. Please pray that the tricks that the doctors are trying will work for her.
I was lucky to find my soulmate in High School at age 17. I married my wonderful husband in May 2003. We have two little fury children, Bear (Yorkie) and Bailey (Maltese) that have given us a little training on how to be parents. After 5 years of bliss, god blessed us with pregnancy of our first child. On October 23, 2008, our little girl was diagnosed with CDH. On February 17, 2008, Addison was born at UCSF. After 22 days of fighting, she choose wings over feet.
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) It occurs at approximately 9 weeks gestation, when the diaphragm, for an unkonown reason, fails to close completely. The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.
CDH occurs in every 1-2500 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
8 comments:
Praying for Addison !
prayers for all of you!
we are praying for Addison.
Much prayers for the 3 of you. Stay strong :)
We are thinking of Addison! Hope all goes well.
This is Kerri that works for Rob. My husband and I have been praying for Addison, and for Ya'll too. We have asked our church to keep praying as well.
We are praying for Addison! You are a very strong lil girl and we are very proud of you :)
~ Carla - Joseph's mom - LCDH (2.3.09 - 2.26.09)
We are thinking about your lovely girl and hoping that the extra days on ECMO will do the trick.
Stay strong!
All the best,
Ingrid, Alex & Alinas
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