I am so honored to be a part of The Parker Reese Foundation. We have so many exciting fundraisers planned over the next few months. I wanted everyone to be aware of what is happening so yo can get involved if you are so inclined. Here is a listing of the events that we have planned:
Change CDH August 1, 2009 - October 31, 2009 Charlie Daniels Fiddle Raffle Drawing on December 1, 2009 2009 Round for Hope (Texas)October 2, 2009 CDH Uncorked (Georgia)November 14, 2009 Addison's Angel Run (Georgia)February 2010 Maxton's March (Kentucky)March 2010 Heals for Hope (North Carolina)March 2010
Change CDH is a fundraiser to benefit Parker Reese Foundation. PRF is a non profit organization based out of North Carolina that provides a home to CDH families delivering at Duke and UNC. they also provided us with tons of support during Addison's life and after her death. They sent a beautiful arrangement to her funeral which let me know that I was not alone in this journey and that people cared. I am so lucky and honored to be part of this foundation.
Change CDH involves collecting your loose change to help PRF! Simply put, I would like everyone to collect their change until October 31st and take the change to the bank and then write PRF a check for that amount. Pretty simple. If you would like to get others involved you can put a jar on your desk at work or anywhere for that matter. $16 sponsors one family per night, so change can definitely make a difference! Thanks to those who are willing to participate. Please help us CHANGE CDH!!!!
It has been a while since I posted. It is hard to believe that Addison would have been 6 months old already. It seems like just yesterday she arrived into this world. Jason and I are doing really well all things considered. We have been keeping busy with the house, The Parker Reese Foundation and weekend get aways!
I am so glad that I have my CDH family! I really do not know if I would have been able to get where I am today with out all of your support. I just want to make sure that I give that same support to the other families that have or will face the same situation that I have lived through.
Jason and I have been cleared to start trying again, but I do not know if we are ready for that huge step. I just know that I will be a nervous wreck the entire time and I am not sure that I can deal with the disappointment of not getting pregnant immediately. We were so blessed just to get pregnant with Addison before we really began trying!
I just want to remind everyone to keep Ireland in your prayers. She is making her entrance into the world today!
I was lucky to find my soulmate in High School at age 17. I married my wonderful husband in May 2003. We have two little fury children, Bear (Yorkie) and Bailey (Maltese) that have given us a little training on how to be parents. After 5 years of bliss, god blessed us with pregnancy of our first child. On October 23, 2008, our little girl was diagnosed with CDH. On February 17, 2008, Addison was born at UCSF. After 22 days of fighting, she choose wings over feet.
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) It occurs at approximately 9 weeks gestation, when the diaphragm, for an unkonown reason, fails to close completely. The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.
CDH occurs in every 1-2500 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.