We were told that because her decannulation procedure may be more difficult due to the placement they will be moving her to the OR for the procedure as a precaution which will require her to be hand bagged during the transport. With this in mind, Dr. K did the trial off ECMO with only hand bagging and the traditional vent support.
Addsion did pretty well on Thursday with the practice wean. They completely clamped off the circuit and her stats dipped but she recovered to oxygen levels in the low 90's to mid 80's on the Traditional Vent (Oxygen in the 60s), but her heart rate and blood pressure were not as stable. Dr. K told us to give her another day and they would tray again. Yesterday, her oxygen levels were not as good (in the mid to low 80's) at the same support but her blood pressure and heart rate were perfect.
Dr. K told us that she has a lot of fluid on her due to the ECMO and they were going to try to get the fluid off over the weekend by upping her dose of Lasic and would try again on Monday. They upped the dose and Addison began peeing like crazy and maintained the rate throughout the day, so we are hoping the chest X-ray will show less fluid build up today!
2 comments:
I love the new picture. You guys hang in there and know that there are alot of people--family, friends, even strangers that are talking with God about Addison. I can only imagine at this point how emotionally draining this journey is for you guys, but she feels your energy and knows how much you love her--and she will FIGHT!
Thank you for the updates--I am constantly checking on Addison and Max--hanging on to every detail. Just know that we are here if you need anything...
Keeping you in our continued prayers. Praying that the chest xray shows less fluid and that she has an easy transition off of ECMO.
Hugs to you.
Take care,
Amy
mommy to ^Faith^ LCDH
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