Addison was diagnosed with a congenital diaphragmatic hernia during her 19 week ultrasound. She was born February 17, 2009 at UCSF. After 22 days of fighting, she chose wings over feet.
Saturday, February 14, 2009
Update - UCSF
The day shift came on at UCSFand decided to check me, and since there was no change or progression, they let me go home! We are now back at the apartment and very happy to be here. They told us that if there is any change to head back. Please pray that we can keep little Addison in for another 14 days.
You guys have been in our prayers. We will be there on March 2nd. It would be great to be able to see you when we go. Kppe us posted--maybe Addison will stay put for another 2 weeks (wishful thinking!) I am always anxious to get your updates. Marion, I am sure you are excited and scared at the same time--I know I am really getting apprehensive and terrified :( We would love to be able to visit you guys in the NICU--we will be doing our birth plan and tour soon. Much love and continued support!!
I was lucky to find my soulmate in High School at age 17. I married my wonderful husband in May 2003. We have two little fury children, Bear (Yorkie) and Bailey (Maltese) that have given us a little training on how to be parents. After 5 years of bliss, god blessed us with pregnancy of our first child. On October 23, 2008, our little girl was diagnosed with CDH. On February 17, 2008, Addison was born at UCSF. After 22 days of fighting, she choose wings over feet.
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) It occurs at approximately 9 weeks gestation, when the diaphragm, for an unkonown reason, fails to close completely. The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.
CDH occurs in every 1-2500 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
2 comments:
You guys have been in our prayers. We will be there on March 2nd. It would be great to be able to see you when we go. Kppe us posted--maybe Addison will stay put for another 2 weeks (wishful thinking!) I am always anxious to get your updates. Marion, I am sure you are excited and scared at the same time--I know I am really getting apprehensive and terrified :( We would love to be able to visit you guys in the NICU--we will be doing our birth plan and tour soon. Much love and continued support!!
We are praying that Addison stays inside for 2 more weeks. As it gets closer I know all these emotions you are feeling so if you need me I am here.
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