Addison was diagnosed with a congenital diaphragmatic hernia during her 19 week ultrasound. She was born February 17, 2009 at UCSF. After 22 days of fighting, she chose wings over feet.
Wednesday, February 18, 2009
Pictures of the Princess
Jason and I went to go and see Addison this afternoon and decorate her home. We took pictures of Mommy, Daddy, and her brothers (Bear and Bailey) as well as Ali the alligator to keep her company when we were not there. We were also able to snap a few pictures.
She is beautiful! Congratulations Marion and Jason. By the way, I went to the church today and said a prayer over your quilt -- there are lots of prayers being sent your way.
Marion and Jason What a beautiful little girl! You have a wonderful blessing. We will continue to pray for you all. May you continue to feel the prayers that are covering you all! Shannon and Rob Gaudette (Sonrise)
Congratulations!! She is beautiful! Keep snapping those pictures~ as the tubes come out you won't believe how different they look~ we are praying for Addison!
Marion and Jason ... could you drop me an email with the most appropriate mailing address for you guys? We'd (Sonrise) like to send you a little something, but don't know how to get it to you.
Your princess is beatiful. We are all praying for her and for you and Jason. Praying that you will feel Gods presence and his love during this difficult time. Love, Uncle Al, Aunt Ruby and all your Jackson family
I was lucky to find my soulmate in High School at age 17. I married my wonderful husband in May 2003. We have two little fury children, Bear (Yorkie) and Bailey (Maltese) that have given us a little training on how to be parents. After 5 years of bliss, god blessed us with pregnancy of our first child. On October 23, 2008, our little girl was diagnosed with CDH. On February 17, 2008, Addison was born at UCSF. After 22 days of fighting, she choose wings over feet.
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) It occurs at approximately 9 weeks gestation, when the diaphragm, for an unkonown reason, fails to close completely. The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.
CDH occurs in every 1-2500 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
19 comments:
She is beautiful! Congratulations Marion and Jason. By the way, I went to the church today and said a prayer over your quilt -- there are lots of prayers being sent your way.
- Julie and Scott of Sonrise
Marion and Jason What a beautiful little girl! You have a wonderful blessing. We will continue to pray for you all. May you continue to feel the prayers that are covering you all!
Shannon and Rob Gaudette (Sonrise)
Congratulations! She is beautiful and your family will be in our prayers.
Gina
Wyatt's Mom
http://wyattjameskoger.blogspot.com/
Congratulations Marion!!!!! She is beautiful :)
We will continue to pray for Addison. I'm so glad you guys went to SF early :)
~ Carla
Congratulations! We'll keep your beautiful princess in our prayers.
She is sooo beautiful. :-) Many prayers!!!
Addison is soooo beautiful ! Prayers will continue for you and your sweet baby girl !
She is so beautiful! Congrats! We are praying for your Warrior Princess.
Congratulations! She is absolutely gorgeous! We continue to keep your family in our thoughts and prayers!
Jessica
Congratulations, She is beautiful, Your family is in our prayers, Jason & Noi Hoffman(Sonrise SS)
What a beautiful blessing! God is with you and you are in our prayers. Love, Mandi and Steve Paris (Sonrise)
She is precious! My daughter (Taylor) and I tied a knot on the quilt and said a prayer on Sunday for ya'll. We will continue those prayers.
Cynthia Hardman and family (Sonrise)
praying for all of you guys!!!!congratulations on your baby girl!!!
Marion & Jason, she is ABSOLUTELY BEAUTIFUL!! Marion--you try and take care of yourself, too! FIGHT, Addison, FIGHT!!!
Congratulations!! She is beautiful! Keep snapping those pictures~ as the tubes come out you won't believe how different they look~ we are praying for Addison!
Congratulations! What a blessing!
Lots of love and prayers from Greenville -
Sandra & Mike Cirilli
and Elizabeth Lowe
Marion and Jason ... could you drop me an email with the most appropriate mailing address for you guys? We'd (Sonrise) like to send you a little something, but don't know how to get it to you.
julie.purdie at gmail.com
Your princess is beatiful. We are all praying for her and for you and Jason. Praying that you will feel Gods presence and his love during this difficult time. Love, Uncle Al, Aunt Ruby and all your Jackson family
She's adorable!
CONGRATULATIONS!
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