Addison was diagnosed with a congenital diaphragmatic hernia during her 19 week ultrasound. She was born February 17, 2009 at UCSF. After 22 days of fighting, she chose wings over feet.
Friday, April 3, 2009
Kaden Kuehl
I want everyone to keep Kristi, Craig, and Kaden in their thoughts and prayers today. Kaden was deliverd early this morning and is just beginning his long fight with CDH. I know first hand that he is in great hands with the staff at UCSF.
I was lucky to find my soulmate in High School at age 17. I married my wonderful husband in May 2003. We have two little fury children, Bear (Yorkie) and Bailey (Maltese) that have given us a little training on how to be parents. After 5 years of bliss, god blessed us with pregnancy of our first child. On October 23, 2008, our little girl was diagnosed with CDH. On February 17, 2008, Addison was born at UCSF. After 22 days of fighting, she choose wings over feet.
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) It occurs at approximately 9 weeks gestation, when the diaphragm, for an unkonown reason, fails to close completely. The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.
CDH occurs in every 1-2500 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
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