We went to Children's of Cincinnati yesterday for our initial consultation. During the day, I had an echo, ultrasound, and MRI performed. We also met with the family support group, a geneticist, and all doctors that are assigned to the CDH team.
At the conclusion of the day, we attended a team meeting with the head of the CDH team, the geneticist, and the CDH neonatal surgeon. During the meeting we reviewed the images and test results from the day and were told that these tests indicated that Addison had LHR of .83 which puts her in the high risk category. They suggested that we talk to USF about the Tracheal Occlusion surgery and referred us to USF for a consultation.
We are currently trying to decide whether to have the surgery which has to be done between 26 -28 weeks or to manage her care after birth. It seems like there is no right answer or evidence to direct you to one way or the other.
I also went to my fetal doctor today for the biweekly checkup and ultrasound. They were able to perform a 3d/4d ultrasound and got amazing pictures of our little princess. She looks exactly like her daddy.
Surgeon Appointment
1 year ago
2 comments:
We are thinking of your little one. I had read that they were doing a CDH study at Vanderbilt about LHR and my doctor at Vandy told me that they had actually stopped doing it because the results were showing that LHR wasn't reliable and that some babies who had a low LHR were doing great while others with a high LHR were not. Thought I would share that with you though I am sure you doctor knows best. Praying for you guys!
Ashley
We are praying for you and thinking of you.
Post a Comment